Motherhood, In The Clutches Of Thalassemia

What is Thalassemia?

Thalassemia is an inherited blood disorder that impairs your body’s ability to produce Hemoglobin. The substance that allows your red blood cells to hold and transport oxygen throughout your body.

International Thalassemia Day 2022

Like each and every year International Thalassemia Federation has announced a theme which is “Be Aware. Share. Care: Working with the global community as one to improve thalassemia knowledge.”

The theme of International Thalassemia Day (ITD) 2022 is an open call to action for all supporters. It is to raise awareness about thalassemia and its global impact, as well as to share critical information and knowledge to support the best possible health, social, and other care for patients with this disease.

This aims to motivate everyone to contribute to the fight against the disease on a personal level, and it serves as a powerful reminder that everyone has a significant role to play and a responsibility to act.

The theme of International Thalassemia Day (ITD) 2022 is an open call to action to all supporters to raise awareness about thalassemia and its global impact, as well as share critical information and knowledge to support patients’ best possible health, social, and other care.

The theme aims to motivate everyone to make a contribution to the fight against thalassemia on a personal level, and it serves as a powerful reminder that everyone has a significant role to play and a responsibility to act.

Living with Thalassemia

While medical research and clinical trials are underway to improve the quality of life for Thalassemia patients and to find a long-term cure for the disease, the average thalassemic will typically face challenges such as –

They struggle to lead normal lives and are constantly tired and fatigued as a result of their low hemoglobin levels.
Suffer from diseases such as anemia, which is caused by iron deficiencies. It is commonly have pale skin, as well as frequent infections and spleen and bone problems.
They require frequent blood transfusions to maintain their hemoglobin levels.

Thalassemia and Motherhood

This year both the Thalassemia and Mother’s day had occurred in a same day. Also, a woman who suffers from this disease can struggles with her pregnancy. Let’s discuss how Thalassemia effects motherhood.

Women with the disease who require blood transfusions often have a higher rate of infertility. However, some women with the disease are able to become pregnant.
The stress of pregnancy can aggravate thalassemia symptoms. During pregnancy, the heart and liver of a woman are especially vulnerable. As it is the endocrine system, which secretes hormones in the body. Before and during pregnancy, each of these systems must be closely monitored.

Hardship of the mother when her child suffers

Caring for children with the disease is a stressful experience in which the mothers face a variety of challenges. As a result, the current study sought to explain the psychosocial challenges faced by mothers with thalassemia children based on their lived experience.

Mothers typically provide the majority of the additional care and support that these children require, putting them at a significantly increased risk of experiencing psychological distress and depression. The primary goal of this study was to see if mothers of children with this disease or blood cancers had higher levels of depression than a control group of mothers.

Final Words

Study shows that a person dealing with the disease can have some other issues as well. Especially women’s who are planning to have a baby. This disease can not only effect their body but also their mental health as well. Hence, we need to have proper care of the woman in our family of they are struggling with the disease. Therefore, in this Thalassemia day lets promise that we should aware of the consequences of this disease and educate every individual. So, that we can fight against this disease.